Lipoedema UK

Diagnosing Lipoedema - Dr Kristiana Gordon Patron of Lipoedema UK
2025-06-19 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/diagnosing-lipoedema-dr-kristina-gordon-patron-of-lipoedema-uk/
Dr Gordon is a Consultant in Dermatology & Lymphovascular Medicine. She is Clinical Lead of the Lymphoedema Service at St George’s Hospital, London where her team care for thousands of patients with primary and secondary lymphoedema from across the UK.

Dr Gordon has completed her doctorate in lymphoedema, but continues to pursue her research interests within the rapidly developing field of lymphovascular medicine and lipoedema.

Latest Compression Therapy Research
2025-06-26 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-9/
Dr Karen Herbst Presents New Research on Compression Therapy

Eating Healthily for your Pocket & Planet
2025-07-10 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/eating-healthily-for-your-pocket-planet/
Hosted by Amy Fetzer – Sustainability Consultant & Author

Eating healthily for your pocket and planet

Amy Fetzer is a freelance journalist, author and consultant specialising in sustainability with a particular focus on food and the hospitality and foodservice industry. She is passionate about empowering individuals and businesses to tackle sustainability challenges like sustainable diets, food waste reduction and using psychology and nudges to help people to choose healthier, more sustainable options. She also supports Lipoedema UK in an editorial capacity, and has written multiple journal articles and reports on lipeodema.

Her talk will cover:

* What is a planet-friendly diet, and why is it good for you, and anyone with lipoedema, too?

– to include discussion on

* What is a whole food diet, what are UPFS and how you can work out which are worrisome

* 30 plants a week and the importance of fibre

* what are anti inflammatory foods and how might they help

* why some foods have a bigger environmental impact and how can you reduce your impact

* How can I eat well on a budget

– to include

* food saving schemes e.g. OddBox, Olio, Too Good To Go

* food saving habits e.g. be a food saver in your own kitchen

* ways to hide veg in family meals/up your plant quota

Medicine and Me: Unmasking Lipoedema - A woman's health condition hidden in plain sight
2025-09-16 14:00 - 17:55 UTC
We’re excited to announce we are collaborating with The Royal Society of Medicine to raise awareness of lipoedema through their online series Medicine and Me.

The event takes place via The Royal Society of Medicine’s online platform on Tuesday 16th September, starting at 2pm.

We have a fantastic line-up of expert speakers and patient voices covering topics from diagnosis to the recent decision by the German Government to fund liposuction for lipoedema.

Please note: The RSM are hosting this event and you will need to create a FREE account via their website for access. Don’t worry it’s easy to do, just follow the below instructions…

Visit the Event Page → CLICK HERE

Select BOOK (orange button)

Scroll down the page and select REGISTER to create a free RSM account (or SIGN IN if you already have one) – Note these are not the same login details as your Lipoedema UK account

Fill in your details, create a password and fill in any contact preferences.

You may receive an email to confirm your email address (click the link in the email to verify it if so.)Now you have set up your free RSM membership account, you can book your ticket…

Fill in your delegate details. (you can type n/a when asked about your career background if not relevant)

Add a free ticket your cart and CHECKOUT

Receive email confirmation from RSM – this confirms you are registered for the event and will receive a link to access the webinar on the morning of the event. If you can’t find it please don’t forget to check spam.

If you are still struggling to register please contact joella@lipoedema.co.uk for assistance.

Event Sessions:

Session 1: Understanding Lipoedema: Foundations of diagnosis and management

Session 2: Lipoedema management in primary care: Challenges in primary care, emerging anecdotal evidence on GLP-1, and the role of nutrition

Session 3: Liposuction in Lipoedema: A German approach to liposuction, updates on the LIPLEG study & implications for the UK

Each session will feature a patient voice, allowing individuals with lipoedema to share their personal experiences, followed by talks from expert international clinicians.

Will the event be recorded?

Yes, the event will be recorded for those unable to attend live, but please register for access.

Share the Event and Help Us Increase Awareness

You can share this event flyer or head to our social media platforms and re-share our posts (social links at the bottom of this page).

We would like as many attendees as possible to help educate and raise awareness! The event is open to international guests too!

How can I learn more?

View the full programme on the event page by selecting the CLICK TO ENROL button below.

Members Open Clinic
2025-09-25 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-10/
Monthly ‘Nurse and Clinical Specialist’ sessions for you to ask questions in a safe environment. Please note all our Open Clinics are live on the night and to maintain members privacy are not recorded.

The BLS Conference 2025
2025-10-06 00:00 - 2025-10-08 23:59 (Europe/London) | The Racecourse, Chester, CH1 2LY, United Kingdom
Join the British Lymphology Society’s flagship annual conference on 6–8 October 2025 for the UK’s leading event dedicated to lymphoedema and chronic oedema care. This year’s meeting offers a rich scientific programme, keynote presentations, interactive workshops, and opportunities to hear from both national and international experts. A special free “Introduction to Lymphoedema” study day will also take place on 6 October, designed to support non-specialist healthcare professionals in developing essential skills and confidence in managing the condition.

Celebrating the Society’s 40th anniversary, the conference will also feature networking events, including the Exhibitors’ Reception and a celebratory dinner with entertainment. Whether you are an experienced practitioner, researcher, or new to the field, #BLS2025 provides an inclusive space to share knowledge, explore innovation, and advance best practice in lymphology.

Lipoedema UK will be in attendance, exhibiting and sharing the latest information with delegates and healthcare professionals.

Best Practice Birmingham 2025
2025-10-08 00:00 - 2025-10-09 23:59 UTC | The National Exhibition Centre (NEC), Pendigo Way, Birmingham, B40 1NT, United Kingdom
Lipoedema UK will be exhibiting and joining thousands of primary care professionals at Best Practice Birmingham & Respiratory Professional Care 2025 – the UK’s leading event for general practice and respiratory health to raise awareness of lipoedema in primary care.

Lipoedema UK Annual General Meeting 2025
2025-10-16 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/lipoedema-uk-annual-general-meeting-2025/
We welcome all members of Lipoedema UK to join us online for our AGM

Members Open Clinic
2025-10-30 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-11/

Lipedema World Congress 2025
2025-11-05 00:00 - 2025-11-08 23:59 UTC | Fiera di Roma – Ingresso Est, Viale Alexandre Gustave Eiffel, Rome, 00148, Italy
Lipoedema UK are excited to be attending the 2025 Lipedema World Congress.

The congress represents a unique and prestigious gathering of leading experts and healthcare professionals from diverse disciplines, uniting lymphologists, plastic surgeons, angiologists, phlebologists, nutritionists, dermatologists, physical therapists, bariatric and metabolic specialists, and radiologists. This congress also welcomes representatives from patient associations worldwide, fostering a truly multidisciplinary exchange of knowledge and expertise at the highest international level.

With a comprehensive agenda covering the latest advancements in pathophysiology, diagnostic imaging, surgical and non-surgical treatment approaches, rehabilitation strategies, and patient-centered care, this event provides an unparalleled platform for scientific discourse and professional development. Attendees will engage in in-depth discussions on innovative therapeutic interventions, emerging technologies, and the integration of personalized medicine in lipedema management.

By bridging research and clinical practice, the Lipedema World Congress aims to refine diagnostic protocols, optimize treatment pathways, and promote a holistic, evidence-based approach to patient care. Moreover, it serves as a catalyst for international collaboration, ensuring that new insights translate into tangible improvements in education, awareness, and therapeutic outcomes.

We invite you to contribute your expertise, exchange perspectives, and be part of this global effort to advance the understanding and treatment of lipedema. Join us in shaping the future of research and care for this often underrecognized yet significant condition.

Members Open Clinic
2025-11-27 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-12/

Lipedema World Congress 2025
2025-12-04 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/news-on-the-lwa-rome-congress/
Our team recently attended the 2025 Lipedema World Congress and returned full of insights and developments about the latest research in lipedema.

We connected with inspiring patient associations and experts from around the world, strengthening global collaboration for a better future for everyone living with lipoedema.

We’re excited to announce we will share an overview of what we learned with our members’ in this special webinar.

Demystifying Liposuction
2025-12-11 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/liposuction-the-latest-news-from-germany/
Professor Manuel Cornely has over 30 years experience of diagnosing and treating lipoedema with liposuction. Professor Cornely is a dermatologist, surgeon and founder of the LY. SEARCH research institute.

Professor Cornely also serves as Scientific Director of the LIPLEG study and sits on the board of the Lipedema World Alliance.

In his webinar Professor Cornely will provide a thorough overview of the key aspects of liposuction for lipoedema.

• Introduction and Background

• Benefits of lipoedema reduction surgery (LRS)

• Different methods of liposuction (WAL, PAL, etc.)

• General vs. local anaesthetic

• What is fibrosis?

• Are the number of litres of fat removed important?

• How to prepare for surgery

• What to expect after surgery

• Waist-to-height ratio vs BMI

• Differences between medical and aesthetic results

Members Open Clinic
2026-01-29 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-13/

Healthcare Professional Event - National Lymphoedema Conference 2025
2026-02-05 00:00 - 23:59 UTC | The Minster Building, 21 Mincing Ln, London, EC3R 7AG, United Kingdom
Lipoedema UK are excited to be exhibiting at The 13th National Lymphoedema Conference on 5th February 20255 at The Minster Building, London!

This highly anticipated event will gather world-renowned experts, clinicians, researchers and healthcare professionals to explore and address the most pressing issues in lymphoedema treatment, research and management.

The conference aims to provide attendees with comprehensive insights into the latest advances and guidelines in lymphoedema management, offering a deeper understanding of the condition’s complex nature.

Sessions will focus on key aspects of patient assessment, including measurement techniques, diagnostic tools, and effective intervention strategies for lymphoedema and lipoedema.

Latest research on intestinal permeability, connective tissue and hyper laxity aspects of lipoedema
2026-02-17 19:00 - 20:00 UTC | https://lipoedema.co.uk/events/drjoseluissimarro/
Dr José Luis Simarro presents the latest findings on intestinal permeability, connective tissue and hyper laxity aspects of lipoedema

Dr José Luis Simarro is the founder and Medical Director of the Instituto del Lipedema y de la Mujer in Madrid, Spain, established in 2007. He has dedicated nearly two decades to the specialised diagnosis and treatment of lipedema, working with thousands of patients. His recent research contributions include a retrospective study published in Biomedicines (December 2025) analyzing clinical signs and comorbidities in 1,803 lipedema patients – one of the largest cohorts published to date – and participation as co-author in the international Delphi consensus study on lipedema diagnosis (Kruppa et al., Nature, 2025). His clinical work focuses particularly on the relationship between lipedema, intestinal permeability, connective tissue disorders, and joint hyperlaxity. He is an active member of the Lipedema World Alliance (LWA).

In his presentation he will be covering the diagnostic approach at the Instituto del Lipedema, sharing key findings from their recent Biomedicines publication regarding the prevalence of hyperlaxity, trochanteric bursitis, and intestinal permeability markers in lipedema patients, and discussing the clinical implications of these findings for diagnosis and patient management. Dr Simarro is particularly looking forward to the Q&A session – “I find these discussions with patients and clinicians incredibly valuable.

I’m really looking forward to connecting with the Lipoedema UK community. It’s always a pleasure to work with you and your team”.

Members Open Clinic
2026-02-26 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-14/

Why GLP-1 Medications Work for Some Women with Lipedema and Not Others: Genetics, Metabolism & Anti-Inflammatory Nutrition”
2026-03-12 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/why-glp-1-medications-work-for-some-women-with-lipedema-and-not-othersgenetics-metabolism-anti-inflammatory-nutrition/
Glucagon-like peptide-1 receptor agonists (GLP-1 RAs) and newer dual agonists such as tirzepatide are transforming obesity care, yet many women with lipedema experience highly variable results—from dramatic weight loss to almost no change at all. This webinar will explore why.

Drawing on the recent study identifying neurobeachin (NBEA) as a novel gene associated with GLP-1–related weight loss, Linda-Anne Khan will explain in patient- friendly language how genetics, insulin sensitivity, and inflammation can shape individual responses to GLP-1 and tirzepatide. She’ll share clinical experience of her patients with lipedema who are using tirzepatide, highlight key messages from her Lipedema World Congress poster on Metabolic dysfunction, insulin resistance, and inflammation in patients with lipedema and review recent anti-inflammatory nutrition research presented in Rome.

Participants will leave with a realistic, compassionate understanding of why responses differ, and practical strategies to combine medication, nutrition, and lymphatic self-care to support better outcomes and quality of life.

Linda-Anne Kahn, CLT-LANA, NCTMB, CMT, is an internationally trained lymphedema therapist, clinical aromatherapist, integrative health coach, and board- certified massage therapist with over thirty-five years of experience. She holds prestigious international certifications from the Dr. Vodder School in Austria, the Foeldi School in Germany, and the University of Adelaide under Drs. John and Judith Casley-Smith in Australia. She is also nationally certified by the Lymphology Association of North America (LANA) and has completed advanced studies in Myofascial Release with John Barnes. Linda-Anne is a sought-after speaker at national and international conferences on lymphatic health, aromatherapy, and fat disorders.

As the director of Lymphatic Therapy Services of San Diego and Beauty Kliniek Aromatherapy Day Spa, Linda-Anne brings exceptional clinical expertise to her integrative practice. She specializes in the treatment of lymphedema, lipedema, and Dercum’s disease, offering comprehensive care for individuals with complex lymphatic and connective tissue disorders.

Linda-Anne is the co-author of the United States Standard of Care for Lipedema and the Lymphedema and Lipedema Nutrition Guide, and she is a founding member of the Lipedema World Alliance. Her commitment to advancing research, education, and patient support continues to shape the evolving field of lymphatic and adipose tissue disorders.

A dynamic educator, she frequently presents at international and national conferences on topics ranging from lymphatic dysfunction and integrative therapies to aromatherapy and metabolic health in fat disorders. She is deeply passionate about empowering clients with personalized, compassionate care and guiding them through their healing journey.

With more than three decades of clinical experience, Linda-Anne excels at identifying root causes of chronic health challenges. Her integrative approach weaves together manual lymph drainage, myofascial techniques, nutrition, customized essential oil formulations, and lifestyle counseling, supporting whole-person healing and optimal lymphatic function.

Healthcare Professionals Event - Wound Care Today
2026-03-17 00:00 - 2026-03-18 23:59 UTC | BMA House, Tavistock Square, London, WC1H 9JP
Our team will be exhibiting at the Wound Care Today Conference in Telford on 17th–18th March to raise awareness of lipoedema in primary care. Registration is free for healthcare professionals, and spaces are still available. Click the link below to view the programme and sign up!

https://www.woundcare-today.com/index.php

Healthcare Professionals Event - The British Journal of Nursing Awards 2026
2026-03-20 19:00 - 23:59 UTC | BMA House, Tavistock Square, London, WC1H 9JP
The BJN Awards event is for Healthcare Professionals Only, it will be held at BMA House in London on Friday, 20th March 2026, celebrating excellence in research and practice while recognising outstanding achievements across the nursing community.

Lipoedema UK will be supporting the British Journal of Nursing Award for Lymphoedema/Lipoedema Nurse of the Year 2026, in association with our colleagues at the The British Lymphology Society.

This award honours the dedication, compassion, and expertise of nurses who transform the lives of people living with lipoedema and lymphoedema

Nominations are now OPEN!Know an outstanding nurse who deserves recognition? Nominate them today via the button below.

Members Open Clinic
2026-03-26 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-15/

Members Open Clinic
2026-04-23 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-16/

Weight Loss Injections and Lipoedema
2026-05-14 19:00 - 20:00 UTC | https://lipoedema.co.uk/events/weight-loss-injections-and-lipoedema/
Join us to learn about City St George’s, University of London latest research project.

The project explores the experiences of people with lipoedema who have used GLP-1/GIP weight loss medications such as Ozempic, Wegovy, Mounjaro and Saxenda.

The survey is being organised by UK doctor Nicole Lim-Wann-Jie as part of the research team at City St George’s, University of London.

Although these medications are not currently licensed or approved for the treatment of lipoedema, increasing numbers of people with lipoedema are trying them. At present, there is very limited research into whether these medications have any impact on lipoedema symptoms, experiences, or quality of life.

During this webinar, Nicole will:

Share an update on the research project at City St George’s, University of London

Explain her role in the study and why she is interested in researching lipoedema

Discuss what the team hopes to learn

Explain how people can take part in the study

Explore why gathering real-world data from the lipoedema community is so important

This research aims to better understand the experiences of people with lipoedema who have used GLP-1/GIP medications, helping to inform future research and clinical understanding.

About the Survey

The study involves an anonymous online survey designed to gather experiences from people with lipoedema who have used weight loss injections.

What the survey involves

Approximately 10–15 minutes to complete

Approximately 40 questions

Anonymous participation

An opportunity to share your personal experience

Contributing to research that may help inform future approaches to lipoedema care and support

You may be eligible if you:

Are aged 18 or over

Have lipoedema (clinician-diagnosed or self-diagnosed)

Are currently using, or have previously used, any GLP-1/GIP weight loss injection for 3 months or longer

Have taken your last dose within the past 12 months

Are able to complete an online survey in English, independently or with assistance

Live anywhere in the world

Please note: these medications are not currently licensed or approved for the treatment of lipoedema. This study explores participants’ experiences of this off-label use.

Take Part in the Survey

Click here to complete the survey!

Members Open Clinic
2026-05-28 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-17/

Lipoedema in the Spotlight – What Clinicians and Patients Need to Know
2026-06-04 14:30 - 18:30 UTC | https://lipoedema.co.uk/events/rsm2026/
We’re excited to announce our collaboration with the Royal Society of Medicine this June for Lipoedema Awareness Month, delivering a FREE, in-depth webinar exploring the perspective of worldwide experts on diagnosis, management, research, and the future of lipoedema care.

What to expect?

Following last year’s successful event Medicine and Me: Unmasking Lipoedema, we’re delighted to once again partner with the Royal Society of Medicine (RSM) to raise awareness their prestigious UK and international clinical community.

This all new 4-hour online session, Lipoedema in the Spotlight: Expert Opinion on What Clinicians and Patients Need to Know, brings together respected international experts and people with lived experience to bridge the gap between research, clinical practice, and patient reality.

We will explore the newly published Lipoedema World Alliance Delphi Consensus-Based Position Paper, which establishes a globally relevant, evidence-based framework for understanding and managing lipoedema.

We will also provide an update from the UK National Institute for Health and Care Excellence (NICE) on the review of liposuction guidance, highlighting the current position and next steps.

Key topics

Our key topics are based on the 8 domains of the Lipoedema World Alliance (LWA) consensus document:

✔ Definition and clinical presentation: a clear, standardised definition of lipoedema and its distinguishing features

✔Pathophysiology mechanisms: current understanding of biological processes

✔Epidemiology: current understanding of biological processes

✔Co-morbidities: associated conditions (including obesity) and their impact on management and outcomes

✔Quality of life: exploring physical, psychological, and social impacts on daily living

✔Diagnosis: clinical approaches and ongoing challenges

✔Treatment strategies and management: conservative, medical, and surgical options within care pathways

✔Future directions: emerging research, innovation, and gaps in care

Who should attend?

This international webinar is FREE and open to all.

It is designed for both people living with lipoedema and generalist and specialist healthcare professionals, including GPs, consultants, surgeons, nurses, allied health professionals, and those working in related clinical and research fields.

Please feel free to share this global event with friends, family, colleagues, and healthcare professionals who may benefit from attending.

Expert guest speakers to be announced soon…

Register today

To register, you must sign up for a FREE Royal Society of Medicine (RSM) account via the link below.

Once registered, you will be able to secure your free place on RSM’s webinar booking page.

If you have any issues registering, please contact us at info@lipoedema.co.uk

Important Access Information

PLEASE NOTE: This webinar is hosted via the Royal Society of Medicine (RSM) and not via the usual Lipoedema Member Zoom link, please register with the RSM even if you are a Lipoedema UK Member and they will send out a link nearer the date.

Members Open Clinic
2026-06-25 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-18/

Members Open Clinic
2026-07-23 18:30 - 19:15 UTC | https://lipoedema.co.uk/events/members-open-clinic-19/
Monthly ‘Nurse and Clinical Specialist’ sessions for you to ask questions in a safe environment. Please note all our Open Clinics are live on the night and to maintain members privacy are not recorded.

Join via Zoom: https://us06web.zoom.us/j/82705967177?pwd=[REDACTED] | Meeting ID: 82705967177 | Passcode: [REDACTED]

Hormones, Lipoedema and weight management
2026-07-30 19:00 - 20:00 UTC | https://lipoedema.co.uk/events/hormones-lipoedema-and-weight-management/
Dr Anjali Zalin is an experienced clinician with a specialist interest in obesity management. She was awarded a 1st class degree and Harvey prize for outstanding academic achievement from Queen Mary and Westfield, University of London before completing her clinical training at Barts and the London School of Medicine and Dentistry. Specialist training in Diabetes, Endocrinology and Medicine was obtained in the North East and North West Thames regions and included quality improvement experience with NIHR CLAHRC Northwest London. She was awarded a PhD by Imperial College London for research focusing on metabolic profiling and stress hyperglycaemia. Dr Zalin currently works as a Bariatric Physician and Clinical Lead for the Luton and Dunstable Tier 3 service and Research Fellow at the University of Bedfordshire. Her clinical and research interests include personalised care, cross-speciality pathways and digital innovation. Dr Zalin works with the Association for Study of Obesity Partnerships Lead (previous partnership lead and co-opted Trustee) and is an Honorary Lecturer at William Harvey Research Institute, Queen Mary and Westfield, University of London.
