Research Projects

We would like to invite you to participate in an international research study exploring the experiences of lipedema before and during pregnancy, and in the first year after childbirth. This study is being conducted by Joanna Dudek, PhD, from SWPS University in Warsaw, Poland, Johanna Falck, PhD, and Professor Jan Martensson from Jönköping University in Sweden. What […]

NICE (National Institute of Health and Care Excellence) invites feedback to help inform guidance The National Institute for Health and Care Excellence (NICE) has contacted Lipoedema UK to invite people who have used NHS Talking Therapies to take part in a survey.  The goal of the survey, which can be accessed here, is to gather information

The Lipedema Foundation Registry (LFR) is an online registry established to help the Lipoedema community, including affected individuals, families, clinicians and researchers. Its goals are to learn more about Lipoedema; understand barriers to diagnosis; better manage symptoms; assess quality of life impact; and develop new treatment approaches. The LFR has developed an ‘Initial Survey’ that