Have Your Say on Lipoedema Pain! Participate in Pain Alliance Europe’s Chronic Pain, Mental Health and Self-Management Survey As part of Pain Alliance Europe (PAE), we’re helping raise awareness of what living with lipoedema pain is really like, and we’d love your support. The PAE’s Chronic Pain, Mental Health and Self-Management Survey is open now and is […]
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Do you have lipoedema? Have you ever been pregnant? We want to hear from you… You are invited to participate in an international research study exploring the experiences of lipoedema before and during pregnancy, and in the first year after childbirth. Participation involves completing an anonymous online questionnaire, which takes around 60 minutes and can
Do you have lipoedema? Have you ever been pregnant? We want to hear from you… Read More »
We would like to invite you to participate in an international research study exploring the experiences of lipedema before and during pregnancy, and in the first year after childbirth. This study is being conducted by Joanna Dudek, PhD, from SWPS University in Warsaw, Poland, Johanna Falck, PhD, and Professor Jan Martensson from Jönköping University in Sweden. What
Take Part in a New International Research Study on Lipedema and Pregnancy Read More »
NICE (National Institute of Health and Care Excellence) invites feedback to help inform guidance The National Institute for Health and Care Excellence (NICE) has contacted Lipoedema UK to invite people who have used NHS Talking Therapies to take part in a survey. The goal of the survey, which can be accessed here, is to gather information
Have you used NHS Talking Therapies? Read More »
The Lipedema Foundation Registry (LFR) is an online registry established to help the Lipoedema community, including affected individuals, families, clinicians and researchers. Its goals are to learn more about Lipoedema; understand barriers to diagnosis; better manage symptoms; assess quality of life impact; and develop new treatment approaches. The LFR has developed an ‘Initial Survey’ that
Lipedema Foundation Registry Read More »
