Collaborate on Research
Lipoedema UK is often asked for volunteers by universities and research organisations researching the condition. We pass these opportunities on to our members.
If you would like to learn more about the research opportunities currently available to people with Lipoedema, see below. We upload details about research projects here as opportunities become available.
Have Your Say on Lipoedema Pain!
Have Your Say on Lipoedema Pain! Participate in Pain Alliance Europe’s Chronic Pain, Mental Health and Self-Management Survey As part of Pain Alliance Europe (PAE), we’re helping raise awareness of what living with lipoedema pain is really like, and we’d love your support. The PAE’s Chronic Pain, Mental Health and Self-Management Survey…
Do you have lipoedema? Have you ever been pregnant? We want to hear from you…
Do you have lipoedema? Have you ever been pregnant? We want to hear from you… You are invited to participate in an international research study exploring the experiences of lipoedema before and during pregnancy, and in the first year after childbirth. Participation involves completing an anonymous online questionnaire, which takes…
Take Part in a New International Research Study on Lipedema and Pregnancy
We would like to invite you to participate in an international research study exploring the experiences of lipedema before and during pregnancy, and in the first year after childbirth. This study is being conducted by Joanna Dudek, PhD, from SWPS University in Warsaw, Poland, Johanna Falck, PhD, and Professor Jan Martensson from…
Have you used NHS Talking Therapies?
NICE (National Institute of Health and Care Excellence) invites feedback to help inform guidance The National Institute for Health and Care Excellence (NICE) has contacted Lipoedema UK to invite people who have used NHS Talking Therapies to take part in a survey. The goal of the survey, which can be…
Lipedema Foundation Registry
The Lipedema Foundation Registry (LFR) is an online registry established to help the Lipoedema community, including affected individuals, families, clinicians and researchers. Its goals are to learn more about Lipoedema; understand barriers to diagnosis; better manage symptoms; assess quality of life impact; and develop new treatment approaches. The LFR has…