For Lipoedema UK member Lisa, a sponsored naked swim was a fantastic way to fundraise and raise awareness of Lipoedema. ‘What better way to spread awareness and embrace and accept the way we are than by doing a naked swim?’ she says. ‘Swimming and moving in water generally are great ways to get the lymph […]
Throughout the world lipoedema is not rare but it is only rarely diagnosed. As part of our work with the Lipedema World Alliance (LWA) Lipoedema UK have been instrumental in creating a worldwide patient manifesto. This initiative is now supported by twenty-one international lipoedema patient groups and organisations. Please download and share our manifesto and
I first heard about Lipoedema three months ago, when I finally got a referral to a local Lymphoedema Clinic. I had been suffering from swelling and pain in my legs for 10 years, which I put down to a serious car accident that caused extensive injury and scarring to my right leg. Every doctor, nurse
‘I was so happy when the nurse told me my weight gain wasn’t my fault’ Read More »
I am now 77 and my Lipoedema was diagnosed in 2022. This photo was taken in December 2021. Symptoms like mine are not a family trait, and my problem only started to show post menopause, about 25 years ago. Prior to that I took the contraceptive pill for 23 years without a break, followed by
‘Lucky to develop Lipoedema only in my later years’ Read More »
Palliative care is my passion. It was a career I had always wanted to pursue after my beloved grandfather died of throat cancer all alone on a busy, general ward, miles away from home and the family who loved him dearly. I have always wanted to try and right that wrong. I joined a hospice
Discovering Lipoedema while working as a therapist Read More »
The decision by NICE [The National Institute for Health and Care Excellence] that there is not enough evidence to provide treatment and support for this life-changing condition is wrong. Please, NICE, come and spend a day in my shoes. When I was diagnosed with Lipoedema in July 2023, it came as a complete shock. However,
‘Please, NICE, come and spend a day in my shoes’ Read More »
As a child, I was sporty, did a lot of Highland dancing and did suffer growing pains for a time. As a teenager, I went to the nearest academy, but at 12 or 13, I was off school for around three months because I was not feeling well (I did have an accompanying raised temperature).
Pai Masendu says the London Marathon is an experience she’ll never forget. Will she do it again? ‘If I manage to get liposuction, then I’ll consider another marathon,” she said. ‘But for now, I’ll stick to half marathons.’ Pai was diagnosed with Lipoedema after many years of being told she was obese. ‘I hated my
In my early teens, I was told by a consultant at St Thomas’s hospital that my ‘large and lumpy’ legs were just puppy fat, and that they would go ‘back to normal’ after puberty. They never did, and it wasn’t long before I was trialling every diet invented in my attempts to change the appearance
After being diagnosed with Lipoedema in 2011, Suzanne Evans set up Lipoedema UK with the support of Professor Mortimer and his team at St George’s Hospital. This is her story. In 1979, I was 14 years old and the dreadfully sexist single, Nice Legs, Shame About Her Face by The Monks, was at no 19
