Patient Stories

My experience with lipoedema and exercise I only discovered that I have lipoedema within the last 12 months, so it’s still fairly new information to me. That discovery answered a lot of long-standing questions about my body – particularly the size and shape of my legs, their sensitivity, and the fact that no matter what […]

I have had ‘big legs’ for as long as I can remember. Even as a teenager I remember clothes never fitting the way they should and never being able to fit into boots because of my legs.  I began to self-harm as a teenager, and over the years, this meant my body began to look

I am a qualified Occupational Therapist (OT). An OT helps a client to build bridges between themself and their challenges. We consider the whole person and their environment. OTs can assess for aids, such as rise-and-recliner chairs, profiling beds, pressure equipment, bath and shower equipment, kitchen equipment and walking aids. We can also refer to

I didn’t know anything about Lipoedema until 2018, but I noticed my legs were difficult to reduce in size after I had my son, who is now 36. I know some people notice symptoms around puberty, and I may have had it then but because I was unusually tall for a female in the 70s,

For Lipoedema UK member Lisa, a sponsored naked swim was a fantastic way to fundraise and raise awareness of Lipoedema. ‘What better way to spread awareness and embrace and accept the way we are than by doing a naked swim?’ she says. ‘Swimming and moving in water generally are great ways to get the lymph

I first heard about Lipoedema three months ago, when I finally got a referral to a local Lymphoedema Clinic. I had been suffering from swelling and pain in my legs for 10 years, which I put down to a serious car accident that caused extensive injury and scarring to my right leg. Every doctor, nurse

I am now 77 and my Lipoedema was diagnosed in 2022. This photo was taken in December 2021. Symptoms like mine are not a family trait, and my problem only started to show post menopause, about 25 years ago. Prior to that I took the contraceptive pill for 23 years without a break, followed by

As a child, I was sporty, did a lot of Highland dancing and did suffer growing pains for a time. As a teenager, I went to the nearest academy, but at 12 or 13, I was off school for around three months because I was not feeling well (I did have an accompanying raised temperature).