I have had ‘big legs’ for as long as I can remember. Even as a teenager I remember clothes never fitting the way they should and never being able to fit into boots because of my legs. I began to self-harm as a teenager, and over the years, this meant my body began to look […]
‘I want to advocate for what can be an extremely debilitating condition.’ Read More »
I am a qualified Occupational Therapist (OT). An OT helps a client to build bridges between themself and their challenges. We consider the whole person and their environment. OTs can assess for aids, such as rise-and-recliner chairs, profiling beds, pressure equipment, bath and shower equipment, kitchen equipment and walking aids. We can also refer to
Advice from an Occupational Therapist for Lipoedema patients Read More »
Have Your Say on Lipoedema Pain! Participate in Pain Alliance Europe’s Chronic Pain, Mental Health and Self-Management Survey As part of Pain Alliance Europe (PAE), we’re helping raise awareness of what living with lipoedema pain is really like, and we’d love your support. The PAE’s Chronic Pain, Mental Health and Self-Management Survey is open now and is
Do you have lipoedema? Have you ever been pregnant? We want to hear from you… You are invited to participate in an international research study exploring the experiences of lipoedema before and during pregnancy, and in the first year after childbirth. Participation involves completing an anonymous online questionnaire, which takes around 60 minutes and can
Do you have lipoedema? Have you ever been pregnant? We want to hear from you… Read More »
Liposuction for Lipoedema Update Lipoedema UK welcome an update to the National Institute for Health and Care Excellence NICE’s Liposuction for chronic lipoedema Guidance, IPG721. See the update from NICE below: “NICE is aware of the LIPLEG trial taking place in Germany and the July 2025 Federal Joint Committee press release about this trial. NICE will review this guidance
Great News from the National Institute for Health and Care Excellence Read More »
Lipoedema UK is proud to share a new blog article written by our Director of Strategic Partnerships, Mary Warrilow, published on the Royal College of Nursing website and shared with the Women’s Health Forum members. Educating healthcare professionals and working in partnership with respected associations is crucial to raising the profile of this under-recognised condition.
Surgical treatment of lipedema: G-BA includes liposuction in the regular catalogue of services after positive benefit assessment German Joint Federal Committee for Healthcare Services (G-BA) met on Thursday 17th July 2025, and recommended that liposuction for lipedema should be funded by the health insurance system in Germany for people with lipedema. This decision recognises
We would like to invite you to participate in an international research study exploring the experiences of lipedema before and during pregnancy, and in the first year after childbirth. This study is being conducted by Joanna Dudek, PhD, from SWPS University in Warsaw, Poland, Johanna Falck, PhD, and Professor Jan Martensson from Jönköping University in Sweden. What
Take Part in a New International Research Study on Lipedema and Pregnancy Read More »
I didn’t know anything about Lipoedema until 2018, but I noticed my legs were difficult to reduce in size after I had my son, who is now 36. I know some people notice symptoms around puberty, and I may have had it then but because I was unusually tall for a female in the 70s,
NICE (National Institute of Health and Care Excellence) invites feedback to help inform guidance The National Institute for Health and Care Excellence (NICE) has contacted Lipoedema UK to invite people who have used NHS Talking Therapies to take part in a survey. The goal of the survey, which can be accessed here, is to gather information
