I didn’t know anything about Lipoedema until 2018, but I noticed my legs were difficult to reduce in size after I had my son, who is now 36. I know some people notice symptoms around puberty, and I may have had it then but because I was unusually tall for a female in the 70s, […]
NICE (National Institute of Health and Care Excellence) invites feedback to help inform guidance The National Institute for Health and Care Excellence (NICE) has contacted Lipoedema UK to invite people who have used NHS Talking Therapies to take part in a survey. The goal of the survey, which can be accessed here, is to gather information
Welcome to our 2024 Year-End Review An Event-full Year… At the Primary Care Show in Birmingham, our stand was of great interest to hundreds of GPs and Health Care Professionals. Our team shared our resources and knowledge, including diagnosing some visitors on the day! Lipoedema UK volunteer and GP Nicki Mazey delivered a packed-out lecture
NHS Stars Series: Rachel’s Story Rachel describes what led her to set up a support group I love my role as a specialist nurse and feel privileged to be able to help, advise, support and guide my patients living with Lipoedema. It is not uncommon for my patients to have had a bumpy ride navigating
The Lymphoedema Conference runs at Chester Racecourse from 7th–9th October, with guest speaker Cheryl Brunelle. The annual conference is suitable for all experience levels, and is a brilliant opportunity to learn about lymphoedema, and to network with industry specialists. For further details, visit the website: www.theblsconference.com. This is a Healthcare Professionals Event.
For Lipoedema UK member Lisa, a sponsored naked swim was a fantastic way to fundraise and raise awareness of Lipoedema. ‘What better way to spread awareness and embrace and accept the way we are than by doing a naked swim?’ she says. ‘Swimming and moving in water generally are great ways to get the lymph
Throughout the world lipoedema is not rare but it is only rarely diagnosed. As part of our work with the Lipedema World Alliance (LWA) Lipoedema UK have been instrumental in creating a worldwide patient manifesto. This initiative is now supported by twenty-one international lipoedema patient groups and organisations. Please download and share our manifesto and
I first heard about Lipoedema three months ago, when I finally got a referral to a local Lymphoedema Clinic. I had been suffering from swelling and chronic pain in my legs for 10 years, which I put down to a serious car accident that caused extensive injury and scarring to my right leg. Every doctor,
‘I was so happy when the nurse told me my weight gain wasn’t my fault’ Read More »
I am now 77 and my Lipoedema was diagnosed in 2022. This photo was taken in December 2021. Symptoms like mine are not a family trait, and my problem only started to show post menopause, about 25 years ago. Prior to that I took the contraceptive pill for 23 years without a break, followed by
‘Lucky to develop Lipoedema only in my later years’ Read More »
Palliative care is my passion. It was a career I had always wanted to pursue after my beloved grandfather died of throat cancer all alone on a busy, general ward, miles away from home and the family who loved him dearly. I have always wanted to try and right that wrong. I joined a hospice
Discovering Lipoedema while working as a therapist Read More »
